Royal Papworth Hospital
Heart and Lung Transplant Supporters
Stories and pages from other people raising awareness of organ donation, sharing their stories and raising money for charity.
Kath received a heart and double lung transplant at Royal Papworth. Heart and double lung transplants are only performed a handful of times per year in the UK. As of 1st February 2019 there are 15 people on the waiting list and only 2 have been done since 1st April 2018.
Kath has several blogs on her personal transplant journey and has published a book on it. She is donating the profits from her book to benefit Royal Papworth Hospital, patient support groups at Royal Papworth, Royal Papworth Hospital Charity and the Pulmonary Hypertension Association UK charities. I recommend her book to anyone who is waiting for a transplant or has been through it.
- Kath’s original blog – with links to her many media interviews
- Kath’s new blog – continuing her campaigning on organ donation together with her many other interests
- Life is For the Living – Order Kath’s memoir as a paperback on Amazon UK
- Life is For the Living – Order Kath’s memoir on Kindle from Amazon UK
Michael went from being a fit and healthy man to being in a wheelchair and relying on oxygen within the space of a few weeks. He had a lung condition called sarcoidosis and was told that without a double lung transplant he had just six months left to live. Michael received his transplant at Royal Papworth and now enjoys his time with his family, grandchildren and great grandson. Michael has also become an active campaigner for organ donation, highlighting the shortage of black and Asian donors. He has run a fundraising event attended by 250 people and is planning another.
- Michael’s story on the NHS organ donation site
- Michael meeting his great grandson and talking about his first fundraising event
Michelle suffered for around 21 years with pulmonary fibrosis and mild pulmonary hypertension. She was on oxygen for about 5 years and we first met her in transplant clinic in Royal Papworth when she was very weak and in a wheelchair. She is one of a group of five people who all received transplants in a record breaking 36 hour period at Royal Papworth. Michelle received a single lung transplant and has gone on to give to give talks about her journey and is organising a fundraising event.
- Michelle and the story of the famous five on ITV
- Michelle’s story on the Pulmonary Hypertension Association UK Facebook page
- Donor Family Network – charity and support group for donor families and providing awareness about organ donation.
- Royal Papworth Transplant Social And Support Group – closed group on Facebook for Royal Papworth patients and families
- Harefield Transplant Club – closed group on Facebook for Harefield and Royal Brompton Trust patients and families
- Heart Transplant Families UK – public Facebook page
- Transplant Chat – public Facebook page
- Transplant Friends – closed group on Facebook
NHS Blood and Transplant
NHS Blood and Transplant is the main site for organ donation and transplant information in the UK. These are a few of the pages, but there is much more information.
- NHSBT Home page
- NHS Organ Donation on Facebook – I recommend following them. They post regular stories either from people whose lives have been transformed by transplant or from donor families sharing their stories of how the death of their loved one has helped many others and has helped them in their grief knowing it’s what the donor wanted.
- Why donate organs – real life stories from people whose lives have been changed by transplant.
- What can I donate – heart, lungs, kidneys, liver, pancreas, small bowel, tissue, bone, corneas. One donor can change the lives of many people.
- Share your decision – don’t assume your family and friends know you want to to be an organ donor, let them know, it will help them if the worst happens.
- Organ donation and belief – all the main faiths in the UK support the principles of organ donation and transplant. I am not an expert on this subject, so if you have doubts check out the page relevant to your faith.
- Statistics about organ donation – everything from the current number of people on transplant waiting lists to the number of each type of transplant carried out in the last 12 months. As of 1st February 2019 there are 625 people in the UK waiting for a heart, lung or heart and lung transplant and only 290 were carried out in the last 12 months.
- Transplant myths – everything you need to know about transplant myths
- Organ donation documents and promotional items – if you want to campaign for organ donation you can order their leaflets, posters and promotional items. Information on different types of organ donation, religious perspectives (in various languages spoken in the UK), key rings, pins, pens, t-shirts, running vests and stickers. All of it free.